{"id":122167,"date":"2020-11-28T20:09:30","date_gmt":"2020-11-28T17:09:30","guid":{"rendered":"https:\/\/en.buradabiliyorum.com\/nj-dad-says-state-stopped-him-from-fundraising-for-sons-treatment\/"},"modified":"2020-11-28T20:09:30","modified_gmt":"2020-11-28T17:09:30","slug":"nj-dad-says-state-stopped-him-from-fundraising-for-sons-treatment","status":"publish","type":"post","link":"https:\/\/buradabiliyorum.com\/en\/nj-dad-says-state-stopped-him-from-fundraising-for-sons-treatment\/","title":{"rendered":"#NJ dad says state stopped him from fundraising for son’s treatment"},"content":{"rendered":"

“#NJ dad says state stopped him from fundraising for son’s treatment<\/strong>”<\/p>\n

\n A New Jersey dad who has completed races around the world raising funds for his son\u2019s muscular dystrophy treatment claims the state\u2019s gambling ban prevents him from auctioning off a Mustang for the charity.<\/p>\n

Jim Raffone\u2019s 11-year-old son Jamesy was diagnosed in 2013 with Duchenne Muscular Dystrophy, a rare, but fatal disease that causes progressive muscle weakness, Patch.com reported.<\/a> That same year, he and his wife Karen founded Jar of Hope to raise money for DMD research, according to Patch.<\/p>\n

Raffone, who lives in Manalapan, has trekked the globe for the cause, Patch reported, completing days-long runs and walks through New Zealand, Australia and most recently, from Old Bridge, NJ, to Washington, DC.<\/p>\n

But the pandemic has put a halt to his fundraising efforts, Raffone said, so he decided to auction off a Ford Mustang to make up for the gap. He planned to sell 1,000 tickets for $100 each to help support an experimental treatment that could extend the lives of children with DMD, as the average life expectancy is mid-20s. The experimental study costs $35,000 a month, Raffone said.<\/p>\n

State officials, however, forced him to cancel the raffle, Raffone said.<\/p>\n

\u201cThe State Attorney General<\/a>\u2019s office is telling us we can\u2019t [raffle the car] \u2026 The Attorney General\u2019s Office says state law prohibits online gambling,\u201d Raffone told Patch.com.<\/p>\n

\"Jim
Jim Raffone planned to auction off a Ford Mustang to help pay for his son\u2019s treatment.<\/span>Facebook<\/a><\/span><\/figcaption><\/figure>\n

Now Raffone is calling on State Senator Samuel Thompson and US Rep. Christopher Smith to help change the law.<\/p>\n

\u201cIn New Jersey, you can bet on a horse or various sports events, to make a profit,\u201d Raffone said. \u201cBut \u2026 you can\u2019t buy a raffle ticket online, from a charity, to help save a child\u2019s life? What\u2019s wrong with this picture?\u201d\n <\/p><\/div>\n

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Source<\/a><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

“#NJ dad says state stopped him from fundraising for son’s treatment” A New Jersey dad who has completed races around the world raising funds for his son\u2019s muscular dystrophy treatment claims the state\u2019s gambling ban prevents him from auctioning off a Mustang for the charity. Jim Raffone\u2019s 11-year-old son Jamesy was diagnosed in 2013 with…<\/p>\n","protected":false},"author":1,"featured_media":122168,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"fifu_image_url":"https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2020\/11\/jar-of-hope-james-raffone.jpg?quality=90&strip=all&w=1200","fifu_image_alt":"","footnotes":""},"categories":[70897],"tags":[82056,28433,73827,82102,28264],"class_list":["post-122167","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-11-28-20","tag-charity","tag-fundraisers","tag-muscular-dystrophy","tag-new-jersey"],"_links":{"self":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/posts\/122167","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/comments?post=122167"}],"version-history":[{"count":0,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/posts\/122167\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/media\/122168"}],"wp:attachment":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/media?parent=122167"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/categories?post=122167"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/tags?post=122167"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}