{"id":413837,"date":"2022-03-09T00:06:56","date_gmt":"2022-03-08T21:06:56","guid":{"rendered":"https:\/\/en.buradabiliyorum.com\/my-girl-died-suddenly-in-her-sleep-with-rare-condition\/"},"modified":"2022-03-09T00:06:56","modified_gmt":"2022-03-08T21:06:56","slug":"my-girl-died-suddenly-in-her-sleep-with-rare-condition","status":"publish","type":"post","link":"https:\/\/buradabiliyorum.com\/en\/my-girl-died-suddenly-in-her-sleep-with-rare-condition\/","title":{"rendered":"#My girl died suddenly in her sleep with rare condition"},"content":{"rendered":"<div id=\"ez-toc-container\" class=\"ez-toc-v2_0_85 counter-hierarchy ez-toc-counter ez-toc-custom ez-toc-container-direction\">\n<p class=\"ez-toc-title\" style=\"cursor:inherit\">Table of Contents<\/p>\n<label for=\"ez-toc-cssicon-toggle-item-6a3fbf6f5925e\" class=\"ez-toc-cssicon-toggle-label\"><span class=\"\"><span class=\"eztoc-hide\" style=\"display:none;\">Toggle<\/span><span class=\"ez-toc-icon-toggle-span\"><svg style=\"fill: #dd3333;color:#dd3333\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" class=\"list-377408\" width=\"20px\" height=\"20px\" viewBox=\"0 0 24 24\" fill=\"none\"><path d=\"M6 6H4v2h2V6zm14 0H8v2h12V6zM4 11h2v2H4v-2zm16 0H8v2h12v-2zM4 16h2v2H4v-2zm16 0H8v2h12v-2z\" fill=\"currentColor\"><\/path><\/svg><svg style=\"fill: #dd3333;color:#dd3333\" class=\"arrow-unsorted-368013\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"10px\" height=\"10px\" viewBox=\"0 0 24 24\" version=\"1.2\" baseProfile=\"tiny\"><path d=\"M18.2 9.3l-6.2-6.3-6.2 6.3c-.2.2-.3.4-.3.7s.1.5.3.7c.2.2.4.3.7.3h11c.3 0 .5-.1.7-.3.2-.2.3-.5.3-.7s-.1-.5-.3-.7zM5.8 14.7l6.2 6.3 6.2-6.3c.2-.2.3-.5.3-.7s-.1-.5-.3-.7c-.2-.2-.4-.3-.7-.3h-11c-.3 0-.5.1-.7.3-.2.2-.3.5-.3.7s.1.5.3.7z\"\/><\/svg><\/span><\/span><\/label><input type=\"checkbox\"  id=\"ez-toc-cssicon-toggle-item-6a3fbf6f5925e\" checked aria-label=\"Toggle\" \/><nav><ul class='ez-toc-list ez-toc-list-level-1 ' ><li class='ez-toc-page-1 ez-toc-heading-level-1'><a class=\"ez-toc-link ez-toc-heading-1\" href=\"https:\/\/buradabiliyorum.com\/en\/my-girl-died-suddenly-in-her-sleep-with-rare-condition\/#%E2%80%9CMy_girl_died_suddenly_in_her_sleep_with_rare_condition%E2%80%9D\" >&#8220;My girl died suddenly in her sleep with rare condition&#8221;<\/a><\/li><\/ul><\/nav><\/div>\n<h1><span class=\"ez-toc-section\" id=\"%E2%80%9CMy_girl_died_suddenly_in_her_sleep_with_rare_condition%E2%80%9D\"><\/span>&#8220;My girl died suddenly in her sleep with rare condition&#8221;<span class=\"ez-toc-section-end\"><\/span><\/h1>\n<div>\n<aside class=\"single__inline-module alignleft\">\n<\/aside>\n<p>A mom has been left heartbroken after her daughter died in her sleep last week.<\/p>\n<p>Danielle Marie Lewis, 20, suddenly passed away at home a few years after being diagnosed with a rare condition.<\/p>\n<p>Her devastated mom, Kirsten, said she had suffered with Gardner syndrome \u2014 with five of her six kids now diagnosed.<\/p>\n<p>It is a rare genetic illness with reduced life expectancy, which is an offshoot of familial adenomatous polyposis.<\/p>\n<p>This is when a person develops more than 100 colon polyps (growths), but people who have Gardner syndrome can have these growths anywhere in the body.<\/p>\n<p>It can make the risk of developing\u00a0cancer\u00a0much greater, with patients often tragically dying young.<\/p>\n<p>The trainee nursery worker had surgery two years ago to remove tumours in her breast and abdomen.<\/p>\n<p>And for the last eight months she had suffered with \u201csevere\u201d\u00a0<a rel=\"nofollow noopener\" target=\"_blank\" href=\"https:\/\/www.thesun.co.uk\/health\/6560048\/sleep-apnoea-what-symptoms\/\">sleep apnea<\/a>, and would fall asleep everywhere.<\/p>\n<p>She had been sent a referral for a sleep study, but died days later on March 3.<\/p>\n<p>Kirsten\u00a0<a rel=\"nofollow noopener\" target=\"_blank\" href=\"https:\/\/www.plymouthherald.co.uk\/news\/plymouth-news\/plymouth-nursery-worker-20-rare-6765206?_ga=2.6061235.1412791583.1646640591-942978605.1634109084\">told Plymouth Live<\/a>: \u201cMy husband\u2019s a carrier, and so is his mum, and now he\u2019s passed it on to my children.<\/p>\n<p>\u201cIt\u2019s that gene that causes desmoid tumours to grow. They can be sporadic, and they can grow any part of the body.<\/p>\n<p>\u201cMy husband\u2019s mother has had extensive surgery all over for removing them. But she\u2019s 77, she\u2019s had a full life. But she\u2019s lived with the condition.\u201d<\/p>\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" loading=\"lazy\" width=\"637\" height=\"1024\" src=\"https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2022\/03\/child-dies-in-sleep-01-2.jpg?quality=90&amp;strip=all&amp;w=637\" alt=\"Danielle Marie Lewis had been suffering with a genetic condition for a number of years.\" class=\"wp-image-21457864\" srcset=\"https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2022\/03\/child-dies-in-sleep-01-2.jpg?quality=90&amp;strip=all&amp;w=1274 1274w, https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2022\/03\/child-dies-in-sleep-01-2.jpg?quality=90&amp;strip=all&amp;w=956 955w, https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2022\/03\/child-dies-in-sleep-01-2.jpg?quality=90&amp;strip=all&amp;w=637 637w, https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2022\/03\/child-dies-in-sleep-01-2.jpg?quality=90&amp;strip=all&amp;w=319 318w, https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2022\/03\/child-dies-in-sleep-01-2.jpg?quality=90&amp;strip=all 1024w\" sizes=\"auto, (max-width: 637px) 100vw, 637px\"\/><figcaption>Danielle Marie Lewis had been suffering with a genetic condition for a number of years.<\/figcaption><figcaption><span class=\"credit\">Kirsten Lewis\/BPM <a href=\"https:\/\/buradabiliyorum.com\/en\/category\/social-mediaa\/\" data-internallinksmanager029f6b8e52c=\"1\" title=\"Social Media\" target=\"_blank\" rel=\"noopener\">MEDIA<\/a><\/span><\/figcaption><\/figure>\n<p>She told of the harrowing morning she found her daughter had died in bed.<\/p>\n<p>The mom said she\u2019d been asked to \u201chelp wake Danielle as she wouldn\u2019t wake up.\u201d<\/p>\n<p>She added: \u201cI walked into her room and knew she was gone.<\/p>\n<p>\u201cI screamed for help but I knew in my heart she was gone. I have never felt so much pain in my life. My beautiful baby girl was gone.<\/p>\n<p>\u201cDanielle was only two months away from being fully qualified to become a nursery assistant, a job she loved and really enjoyed.\u201d<\/p>\n<p>She revealed she has been told Danielle had COVID when she died, but the mum doesn\u2019t believe that is her cause of death.<\/p>\n<p>The family has\u00a0<a rel=\"nofollow noopener\" target=\"_blank\" href=\"https:\/\/www.gofundme.com\/f\/help-us-with-my-beautiful-daughters-last-journey\">set up a fundraising page<\/a>\u00a0to help with funeral costs.<\/p>\n<p><em>This story originally <a href=\"https:\/\/buradabiliyorum.com\/en\/category\/download-scripts-themes-apps\/\" data-internallinksmanager029f6b8e52c=\"9\" title=\"Download Scripts &amp; Themes &amp; Apps\" target=\"_blank\" rel=\"noopener\">app<\/a>eared <a rel=\"nofollow noopener\" target=\"_blank\" href=\"https:\/\/www.thesun.co.uk\/health\/17879254\/daughter-died-suddenly-sleep\/\">on The Sun<\/a> and was reproduced here with permission. <\/em>\n                        <\/div>\n<blockquote><p><strong><span style=\"color: #ff6600;\">If you liked the article, do not forget to share it with your friends. Follow us on\u00a0<span style=\"color: #ff0000;\"><a style=\"color: #ff0000;\" href=\"https:\/\/news.google.com\/publications\/CAAqBwgKMLG0nwswvr63Aw\" target=\"_blank\" rel=\"nofollow noopener noreferrer\">Google News<\/a><\/span>\u00a0too, click on the star and choose us from your favorites.<\/span><\/strong><\/p><\/blockquote>\n<blockquote>\n<p style=\"text-align: center;\">For forums sites go to <span style=\"color: #ff9900;\"><a style=\"color: #ff9900;\" href=\"https:\/\/forum.buradabiliyorum.com\/\" target=\"_blank\" rel=\"noopener\">Forum.BuradaBiliyorum.Com<\/a><\/span><\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p style=\"text-align: center;\"><strong>If you want to read more <a href=\"https:\/\/buradabiliyorum.com\/en\/category\/news\/\" data-internallinksmanager029f6b8e52c=\"2\" title=\"News\" target=\"_blank\" rel=\"noopener\">News<\/a> articles, you can visit our <span style=\"color: #ff9900;\"><a style=\"color: #ff9900;\" href=\"https:\/\/en.buradabiliyorum.com\/news\/\" target=\"_blank\" rel=\"noopener\">News category.<\/a><\/span><\/strong><\/p>\n<\/blockquote>\n<p><span style=\"color: black;\"><a style=\"color: #ff9900;\" href=\"https:\/\/nypost.com\/2022\/03\/08\/my-girl-died-suddenly-in-her-sleep-with-rare-condition\/\" target=\"_blank\" rel=\"noopener\">Source<\/a><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>&#8220;My girl died suddenly in her sleep with rare condition&#8221; A mom has been left heartbroken after her daughter died in her sleep last week. Danielle Marie Lewis, 20, suddenly passed away at home a few years after being diagnosed with a rare condition. Her devastated mom, Kirsten, said she had suffered with Gardner syndrome&#8230;<\/p>\n","protected":false},"author":1,"featured_media":413838,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"fifu_image_url":"https:\/\/nypost.com\/wp-content\/uploads\/sites\/2\/2022\/03\/child-dies-in-sleep-02.jpg?quality=90&strip=all&w=1024","fifu_image_alt":"","footnotes":""},"categories":[70897],"tags":[126518,71402,1545,70736,73461],"class_list":["post-413837","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-3-8-22","tag-cancer","tag-coronavirus","tag-deaths","tag-diseases"],"_links":{"self":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/posts\/413837","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/comments?post=413837"}],"version-history":[{"count":0,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/posts\/413837\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/media\/413838"}],"wp:attachment":[{"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/media?parent=413837"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/categories?post=413837"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/buradabiliyorum.com\/en\/wp-json\/wp\/v2\/tags?post=413837"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}